Sunday, October 21, 2018

the start of my week was like!

Talking to some friends over this past week and thought I would add a few remarks here....first a favorite meme of mine BUT it doesn't say it all just a bit of what life it with fibromyalgia then add in the other autoimmune problems I have.

Can't remember where I picked this up so I can't give credit where it is due but this is me on a good day of late.

I had an interesting week with 4 doctors appointments and very little else.  I saw the pain management doctor on Tuesday and Friday about my failed back.  I had my back surgery over a year ago and it still is deteriorating from day to day.  I am trying these injections in hopes of prolonging having to have the surgery again.  I tried the shots before surgery and they didn't work so I am not expecting much.  They already have tried two types facet and some spine stem shot that did nothing but make me pee my pants which the pain management doc things is funny.   Anyway I went back Friday and had 4 shots either side of my spinal column.  1 steroid, 1 marcaine each side.  Kinda worked and today my low back feels better then it has in months.  When you add the 18 pressure points and pain from fibromyalgia in with the back surgery I am miserable at times.  I can't even stand clothes on my body.

The second appointment was with my talk therapist Debbie.  We discuss all sorts of things in our sessions.  I started going to see her just over 2 years ago.  My daughter and my internal medicine doctor thought that I really needed it especially after some drugs for my fibromyalgia symptoms and depression caused me issues.  I take a cup of coffee and go talk for an hour and in the 2 years I have found out a lot of stuff about myself....for example I have PTSD that was related to my childhood and work.  My depression is because of my pain and life change issues...I mean hell fire I am 66 years old and expected to be able to live the good life not one of pain.

The last appointment was with the urologist!  I need to have surgery for that he says but I keep putting him off.  He started me on a different kind of pee pill this week and I think I am already going to quit taking it.  Makes my head more fuzzy!






I did get out to Monday Night Pint Night at McNellies and had a decent beer.  I know not allow will Celiac but you know you got to cheat somewhere and it doesn't cause me much of a problem if any.  I just drink one and then switch to ciders or the stronger stuff like a Bloody Mary!!  It is good fun and a diversion with friends.









I went and had coffee with friends and talked out our latest health issues.  One coffee date with Sharron we managed to settle a bunch of world issues.  Sharron had a brain tumor removed last year, a nasal surgery that has developed 4 types of staph.  We sit far apart.  What is sad is the way the doctors are treating her even though she has provable issues with X-ray and labs.  Like I told her I think it has to do with her autoimmune disorders cluttering up their brains.  Sharron's daughter is a juvenile onset of Fibro and other autoimmune issues.  SO we have a lot to talk about some days.  Love them a lot!

Okay I am off of here cause I don't have much more to say about last week.  I watched quite a few Netflix movies while trying to collect a few more spoons to make it through the day.  I will try to post every week...

Saturday, May 19, 2018

fasting!

This is the third time I have tried to write this post and I figured I should offer a reason if it shows up three times!  Don't know what the cause is but it just doesn't seem to be saving or publishing!
@Rawls.com
I wanted to let people know about an article I read on Rawls.md earlier today about fasting resetting the immune system clock.  The article called Can Fasting Renew Your Immune System is one of several I have read recently talking about how fasting causes the body to shut down some of its working sand reset.  As Dr. Rawls points out the body kills off old and damaged cells to conserve the bodies resources and when it starts getting more nutrients it begins producing new and healthier cells.

I would like to try a form of fasting but my body wouldn't go along with it.  In 1992 I was fasting along with several coworkers on a new fasting diet and it was discovered that I have an insulin producing tumor called an insulinoma that only gives me grief when I try to diet.   An insulinoma is a relatively small tumor, about 1", and can be benign or malignant...only 10% are, and usually occur in the GI tract...most on the pancreas.   Mine has never been found on CT or MRI and Doc told me if I was lucky it would never grow big enough to be found...people die with the tumor not from the tumor.

Anyway back to the fasting...I am going to try the Time-Restricted Feeding form of fasting for as long as I can tolerate it or until I notice a change in my immune system.  I am so tired of being tired!  It won't be a big deal for me because I don't normally eat until later in the day so restricting myself to food only between say 2pm and 10pm daily might show a difference.  I plan on eating a lot more healthier foods and staying away from wasted calories...hmmm...maybe I will limit it to 1000 cals per day.

I will report back and tell you what I find out as I go along.

Wednesday, February 14, 2018

Happy Valentines Day and my first WOYWW in a long time!

Happy Valentines Day and welcome to my desk.  It has been a while since I have posted to WOYWW but thought today was a good time for me to just jump back in...first off my desk...
I haven't really done much but have decided I was going to get started again TODAY!  I bought the little Sizzix die cut machine and a few dies the other day on sale so stay tuned to what I produce!  I did join a group for a tag swap and made this tag...one and only thing in months!
Being and over achiever I made six instead of the 3 we were told to make!
Up close!
On a personal note!
It has been a year and then some for me!  I am not going to whine...much.  Still having problems post op back surgery.  Sat down too hard at PT and caused a hairline fracture to one of the vertebrae.  Thats the bad news...good news is I am developing bone matrix and should be healed in a few more months.

My baby sister Carol Ann passed away on the 16 January this year.  Carol was 6 years younger then me and was a whiz kid with numbers and mathematics and besides being so intelligent she was an awesome person both inside and out!  It came as a surprise when she was diagnosed last May with stage 4 adenocarcinoma.  Carol was married to Stan for 42 years this June.  They have 3 boys and 8 grandchildren.
Carol a couple years ago!

Okay that is it for me!  Go check out WOYWW and follow Julia's info for joining in the fun!