Sunday, May 29, 2011

May 28, 2011

Where has the month gone...must be the pills I have been taking making me lose track of time! That is a joke but there is more than a grain of truth to it too!

I have had a fairly good month so far with my pain being fairly tolerable with only one or two pain pills a day to help out! I thought I would try to not take the damn things but folks life is too short and I feel better when I take them. They don't seem to help that Fibro pain a whole lot but they work fabulously on the osteoarthritic pain and the headaches I have been getting.

Heather's Mother in law passed away on May 9, 2011 after a long battle with her cancer. Michael was already up there so Heather and I traveled up on May 10, 2011 by car to help support him as he buried his Mother. We ended up staying there for a total of 12 days and helped a little bit this helping sort things out in her house before we came home on the 21 May so Heather could go to work that next Monday in Salina, KS. It was a busy and difficult time for everyone. I tolerated the strange bed and activity fairly well but was ever so happy to come home.

I have finished the appeal paperwork finally for my appeal with the Social Security Disability people and will be going to drop off some paper work next week to finish it off. I assume it will be another long waiting game to see whether I get approved or not. If I don't this time then I will be hiring an attorney to assist me with the procedure. I probably should have to begin with but I thought I could do it myself. They always know all the right buzz words etc. My doctor wrote a really nice note to the SSDI about my disability and how I can't work so I am hoping they will listen to him.

I called a nurse recruiter (she's a friend) at the hospital where I worked and explained my situation to her regarding my medical condition and about what the SSA had written me about how I could do some work and asked her if she had a position for me. She told me that she doubted any hospital in the metro area would hire me given my situation. I can't walk more than 5-10 minutes without tiring, can't sit more than 30-45 min at a time then I have trouble getting up and walking after sitting that long. I get dizzy and some times fall. I fatigue easily and do not recover readily. When I get tired my memory and recall are very poor. It takes a couple days for me to recover after just a few hours grocery shopping and that with a handicap sticker and the go carts in the stores.

I have an appointment the 29 June with a rheumatologist that I am hoping will be able to give me more insight into what is going on with me. I don't understand why it takes so long to get in to see a doctor in this town!!


27f28718-8a16-11e0-9bda-000bcdcb5194 said...

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Sande said...


Though I don't suffer from the same issue as your have I dealt with SSDI. I was denied twice and about at my wits end. I see that you were dropping off papers and then going to wait. I would suggest not waiting. I you can't financially afford a lawyer legal aid will do this for you free of charge but if finances allow I would go to your lawyer and start the ball rolling. It takes months to process. Three long years of going back and forth and being denied and when I put it in the hands of legal aid it was done and over with in 2 months. I was approved and had my first check in 4 weeks with a back check for all those years of waiting.

Dawn said...

Gosh, poor you. I am also a suffer of Fibro and ME I was going back & Forward to several Rheumatoid Dr's and still it took them nearly 2yrs to give me this diagnosis. My Dr sympathises and refers me to any thing he can (thank goodness this is all free) However, you do have to wait a few months for an appointment once referred. I have been discharged by the hospitals as there is nothing they can do.

Great here's your label and go away we don't know how to help you and that took them two yrs and several very unpleasant lumber punctures, tests, x-rays etc

Thankfully I do get help from our Social Services I have a blue badge (to help with parking) And like you I cannot work so I get some funding to keep us going (not much but enough to pay bills etc)

I really sympathise with your situation. It wouldn't be so bad if we new what caused it and then we can work from there, but although it's higher in women than men etc there are too many variables to determine what is the cause.

I will try and keep in touch with this blog thank you for the information and I do hope you get some satisfaction soon Dxx